Friday, April 15, 2016

Bearskin Meadow Camp


     I remember standing in my kitchen, walking in circles around our wood block island while on an over-the-phone interview with the Bearskin Meadow Camp director. I did not know what to expect, as I had never done a formal job interview, and I didn't know what he wanted to know, or what I was supposed to say. But he was really nice, and excited to have a diabetic come as a counselor from across the country.

     I forget exactly where I first heard of Bearskin Meadow camp, perhaps it was on a diabetic magazine's listing of camps, or perhaps it was a friend's recommendation. But applying for and accepting the position turned out to be one of the most exciting, important, and life alerting experiences of my life. So much so, that I returned for three summers in a row ('97, '98, '99).

    My family and I worked my first year into a vacation. We planned a trip to San Francisco, and then headed north into the Redwood forest, circling back around to the camp in Kings Canyon / Sequoia National Forest/Park, just outside of Fresno. They dropped me off and flew home. I can recall the first couple of awkward days. Since most of the people there knew each other, I probably came off as pretty quiet. I was not necessarily a shy kid, but I tended to be in new social situations. So the first few days before the first group of kids got there, I was a little uncomfortable, missing my friends, and unsure if I could handle being out there for 2 months.



    But those initial feelings did not last very long. Once the camp started, and the kids arrived, I fell right into a routine and enjoyed every minute of it. The first group of kids I was in charge of were ages 10-11. I felt like it was the perfect age to work with, where they were old enough to play organized activities somewhat competitively, but they were not yet angsty or "girl-crazy." The camp itself was going through a process of expanding and their plans to build a new deck were not complete by the time camp began. You see, there were no cabins or buildings: it rained so seldom in the park, that we were able to sleep in sleeping bags on cots on roofless decks. So with "Granite" not yet complete, our deck slept on a tarp pinned down across a big slab of granite with a couple of tents pitched to store our clothes and supplies. 

Inspection Award
Boys Decks Staff Assignments
Pre-Deck site for Granite

       Each deck was organized by age for the kids camps. As counselors, we spent the whole day with our set of kids and went through a variety of daily activities to help bond with each other.  After two sessions of the kids came the teen week. Because everyone there was basically one age, the decks were sorted by "major." I was a Fine Arts counselor, so the kids on my deck went with me to the Arts & Crafts building and I basically spent the whole day with them there. But in both cases, there was free time set aside for the deck. This was unorganized time the deck and counselors could choose what they wanted to do as a group. We could hang out on the deck and play cards or do a number of activities in the woods. One of the activities I organized I developed based on the long discussions we had at the PA Teen Weekends. I mapped out a scenic route through the woods marked by neon flags. The kids, one at a time, had to follow the path leaving as much room between each other as possible to create the feeling of being alone with their observations and the natural sounds of the woods. We came out the other end of the trail with introspective thoughts and insights into ourselves, and it was received very positively.

      I had just turned 19 during my first year as a counselor. The teen campers ranged from 13 - 18. Feeling like I needed an extra bit of experience to work with the kids better, I told them I was 21. But I felt bad and finally came clean at the end of the week to a surprisingly positive reaction. I think one kid said it best with "Nah man, I don't care. It just means you couldn't buy us beer now, that's all."

Just a few of the Fine Arts camp activities

Fine Arts Building

Mattress wrestling during deck free time
   
     Our other major responsibility was to look after the kids in a supervisory medical capacity. We were all aware of the signs of low blood sugar, so it was part of our job to make we had testing and low supplies at all times and that the kids were staying balanced. The biggest problems tended to arise at night. Camping out in the woods, being active all day, and eating regulated amounts of food at routine times was a change of habit for most of the kids, and quite often, was a recipe for nighttime low blood sugars. After all the campers went to sleep, a selected group of counselors stayed up until midnight in order to come back and take their overnight blood sugars. Juggling a meter, strips, low supplies a pen and paper, we'd wake up each kid and test their sugar. We treated lows with the 15 - 15 rule if low (give 15 grams of carbs and wait 15 minutes to retest). The medical team would need the info the next day in order to adjust their insulin dosages, so we had to scratch the numbers down on whatever we had lying around.

Typical Midnight Testing Scratch Sheet

     The next morning we tested the kids again, and gave they wrote them down in their logbooks/hands, along with their midnight numbers. With every insulin dosage, they needed to have it adjusted by our medical staff as a safety/legal precaution and practical tactic. So the morning, the kids would go to the alphabetical shot line headed by a med-staffer. The staff member would regulate their dosages based on their logbook and their traditional regimens. The kids would receive their discussed insulin dosage written down and bring that info one of their deck counselors us who would watched them give the correct amount. Some kids would try to take more insulin in order to get more food.

Basic Shot Line Instructions: Humalog was still relatively new
Typical Shot lines at Family Camp  
     This was an age before insulin pumps took over: only a few staff and even fewer kids had them. One staff member told us about one of the first pumps she tried out in the 80's which was the size of a backpack, and you had to wear it in the same manner. The more informed staff foresaw the mass production and streamline technology that Minimed was developing as the field leader. It even made sense to buy stock in the company. I was one of the non-pumpers at this time, as I stubbornly distrusted a machine to push insulin into my body. But as I saw the effectiveness, efficiency, and reliability from other pump users, I had to get my own. By the time my third summer rolled around, I applied for my first Minimed pump. (At camp, I first tried a trial pump site, where I administered insulin by syringe hooked up to the end of the pump tubing. Later, after talking with the med staff, I tried the camp's loner pump for a week or so, and there was no going back)

Syringe-to-Pump Site trial
Camp Loaner Pump
     Toward the end of the summer, we had four sessions of  family camp. The idea- a fantastic one at that- was to invite the diabetic child/children and their entire family to camp in order to experience and learn together. It was nice for the siblings of diabetic kids to see other kids with diabetes and it was a time for the diabetic kids to be the majority among peers- a sometimes much needed confidence booster. During the day, the parents had educational classes with the medical team, experts, and sometimes, panels of diabetic counselors. We were not just counseling and watching their kids all day, but we were able to share our experiences, commiserate with the parents, and be living examples of how to succeed with diabetes. The parents also gained insight and growth through talking with the other parents. All the while, their kids were group by ages and siblings, and they would partake in activities that the camp and national park had to offer. One of the big highlights, aside from Family day in the park (where the families took a vacation from camp for a day) were the talent shows. Sure, they were mostly silly and the skits were kind of repetitive, but they were like old songs you wanted to get stuck in your head. And it was all in the name of normalizing diabetes and gaining confidence for everyone involved.

Staple "Howdy Buckaroo" talent show skit
Teen campers overnight trip to Buck Rock Lookout

     But personally, the most life impacting things were the other counselors and the lifelong bonds we forged. I went to community college for two years, and then Temple University for two more, but Bearskin Meadow was my real "college" experience. I learned about myself, and practical tips of living with diabetes through friend's experiences. Simply put, there was something almost magical about being isolated in the woods (before cellphones, smart technology and the internet's great insurgence) with a bunch of other diabetics.

Talking at one of the campfires

     While on break for a "treat" or a "real world fix," we'd find a friend with a car and go to the 6.5 mile drive to the Christian Camp at Hume Lake for their snack bar and general store. On my third summer there, I drove cross country so I'd be the one with a car. We'd "shamble" to places in the park with general names like "nearby" "up there" and "over there" to build a campfire, laugh and unwind. It was the youthful growing up where I transitioned from relying on people to being self-reliant. I was always a unique teenager, with a personalized, individual style in high school, and by the end of my first summer, I was comfortable to be that self again.

Travelling across country with friends
Staff dinner in the dining hall 
     The greatest of these experiences occurred in our free time between camp sessions. We could plan with friends to explore the park, or other parts of California. It was all new to me, so I was up for anything. Being from Pennsylvania, I never had the opportunities to do the same level of hiking and natural, outdoorsy experiences that one can do in a mountainous national park. I hiked up 11,207' to Alta Peak, ran through snow covered caps on the way to Pear Lake, and saw a fair share of bears at the camp and throughout the park. Bears were so frequently seen in the park, that other wildlife seemed rare. We saw a deer this one time, everyone freaked out and we trailed the deer as if it were some unique celebrity siting. We'll just say PA has more than their fair share of deer.

Our Trash Eating Bear
That Terrorized The Camp
Postcard-esq view on the Watchtower Trail to Pear Lake
     We often drove down to Fresno to catch a movie (a mistake if the movie was The Blair Witch Project, and we were isolated in the woods for weeks at a time) or stock up at Wal-Mart or Vons. I drove stick for the first time around central California, on a 4 day trip that included hitting many of the San and Santa cities along the coast. This included sleeping on a beach under a stage for a night in Santa Cruz and in a plum orchard surrounded by coyotes at the base of the park. All of this while in the company of people with a strong knowledge of diabetes. We all had each other's back, and we felt like we could do anything. We were safe knowing that we shared the same problems with, and knowledge of, diabetes (even with non-diabetic counselors: ultimately, there was no difference).
Diving into the waves
On the beach of Santa Cruz
The Santa Cruz Stage 

Thursday, March 24, 2016

Product Testing


Just a quick blog post to list a couple of Diabetes related product studies.

     On occasion, I have received calls to product-test diabetes related items that have not yet come to market, but of which, the manufacturers want opinions to improve or alter their product. I am not qualified for all of the tests, some need syringe diabetics, some need CGM diabetics, some need type-2 only. But for the ones that I qualified for, I think there have been four, here is a little about them. I was qualified for a fifth, but on my way to the study, a passenger in a double parked car opened his door into me exactly as I was passing on bicycle. I was fine, but due to the bent wheel, I could not make it in time.

1. Product test: Pre loaded insulin reservoirs - seemed like an item designed out of laziness. I do like to be able to refill my pump reservoir if I am out of insulin, and there was a lot of extra packaging that seemed like a waste.

2. Insulin Enhancer: there was a product that you would add to your insulin reservoir that, when injected via an insulin pump, was supposed to either make the insulin work faster, or more efficiently. It seemed a little convoluted in theory, but it's application was simple to use: which was what they were really testing.

3. Iphone App. This was a simple study, asking diabetics if they would want or use apps on their Iphone to track diabetes related necessities, like food and blood sugar diaries, and streamlined pharmacy updates and reminders. I did not have an Iphone of my own, but I had used one enough to just borrow one.

4. Online Personal Diabetes Coach. Similar to the Iphone app study, but a one stop shop for a health coach that would motivate diabetics to eat right and stay fit. This session was designed to see if people would feel about using one and providing health info in to personalize the experience.

Wednesday, March 23, 2016

Medical Study: Effects of Resistive Excercise on Insulin Sensitivity


      During my senior year in college, I saw an medical flyer posted asking type one diabetics to partake in a 5 day hospitalized study. I had just graduated college, so why not start a career in lab rat experiments. It was financially compensated, so in the name of science, I could not say no.

     After meeting with the doctor leading the study, I learned most of the time would be spent bed-ridden, and the bits of  working out would be minimal, as the whole point was to isolate weight lifting, and see its effects on insulin absorption compared to sedentary absorption.


     I remember having a roommate who was also participating in the study, but I don't remember anything about him. I know the day I got out, I celebrated with a friend at McGlinchey's downtown. I have not really thought about it since, but thanks to this blog, I decided to look it up, and it seems like it was completed 9 years later, and the results are posted here, in the journal of sports rehabilitation:

Insulin-Sensitivity Response to a Single Bout of Resistive Exercise in Type 1 Diabetes Mellitus

Wednesday, March 16, 2016

JDRF Promise Ball - 2001


     On May 5th 2001, My family and I volunteered at the JDRF Promise Ball. Every spring, the JDRF holds a fundraiser via live & silent auctions to raise money for research toward a cure. It is still going strong, now in its 31st year.

     Wealthy people, devoted folks, and local celebrities all gathered for a dinner and cocktails along with a hefty donation/fee at the Hilton along the Delaware riverfront. They walked around, drank, ate, and did that forced social interaction that many people seem very fond of. But the main draw of the night were table and pedestals placed around the ballroom lobby with many wondrous items for auction that they could all bid on. It was 15 years ago, and my pauper eyes were not allowed to stain their illustrious prizes (I just don't recall what was up for auction, and we could have bid on the items if we had a spare thousand lying around nearby).

     After they saw everything and tired of walking around, or tired from having their personal servants write down bids, they all shuffled into the ballroom to be served their sustenance with a collective eye-roll. A live auction was held for things that were more prestigious than the baskets of goodies and gift certificates in the lobby. Some folks spent their time looking at their pocket watches through a monocole, counting down the seconds until they could leave, while other donators bid on things like spending a day with a local celebrity (newscaster), golf with a washed-up athlete, vacations to places that did not want them, and sports memorabilia that probably could have done fine sitting out in the lobby.

     It was out job as volunteers to be runners, or folks who would take the winning item or representative item plus the validation ticket to the now-slightly less rich winner. With food typically falling out of their faces, we handed over their prize which they surely did not actually need. Sometimes a photo would be taken of the materialistic hand off, if the bid was unusually high, or if the item was unusually interesting. After each round, we would filtered back into line like cattle by the side of the stage, anxious for our turn to run the next prize out to the elite.

    Our thanks was a nice, mock-amber glass heart necklace attached to a red string.  We were able to take part in the appetizer self-service stations as well, and it was reward itself getting to feel small and insignificant around all of the big bellied aristocrats and their fur-laden accompaniments. But I guess it was fun, too.

Tuesday, March 15, 2016

ADA-Dartmouth HMC Winter Weekend

Hulbert Center Map

     Thanks to a couple east coast friends from Bearskin Meadows Camp, I was able to joined them as a counselor for an ADA sponsored winter weekend in association with the Dartmouth Hitchcock Medical Center back in 2004. Both friends had been counselors there before, but it was again fun to try out a new camp.

     Based at the Hulbert Outdoor center in Fairlee VT, this teen weekend had over 50 kids, and activities included a ropes course, ice skating, sledding, team building, and education: all geared toward confidence building and acceptance of their diabetes. This was nothing new and patterned all of the other camp experiences I've been a part of.

Outdoor Activities
     Nothing really stood out as being an exceptional experience, but I remember a couple of things.

I remember sitting at the orientation meeting with the friends from previous camps. It was a nice time to see them again, as it had been a couple of years since we last hung out or spoke in person.

I was one of the counselors for one of the teen boy cabins, and being teenage boys, they only wanted to go out and bother the girls. I think we ended up rigging a soda can full of water over the door to overturn on any kids that tried to escape for a nocturnal meeting. If i remember correctly, the girls were having similar problems.

There was a dance with games and competitions. I ended up winning the limbo contest, but regretted it later, as the game probably should have gone to one of the kids. But getting caught up in the moment, and being pushed by others drove the win home.

     I was not in touch with the camp again after, nor ever went back. Like the Clara Barton camp

Clara Barton Wacky Weekend


      The ADA camp director for the PA teen weekends had connections at other camps, including this "Wacky Winter Weekend Camp," hosted by the Clara Barton Diabetes Center (now named The Barton Center for Diabetes Education). The camp was named after the woman who founded the American Red Cross and was born in the same town of North Oxford, MA. I believe the camp location was on her original property.

View from the "Mountain" out behind the camp
                                        

     The main goal of the camp was to normalize diabetes, as it asked children with diabetes it bring their non diabetic friends or siblings. The camp is still in existence today, and is associated with Camp Joslin, named for Dr Elliot Joslin, who was one of their first doctors to administer insulin to children suffering with Diabetes in 1932 when the Clara Barton Birthplace Camp was first formed.  

Kids performing a song in the community room
     

     Because it was a two day-two night camp experience nearly 20 years ago, I don't remember that much from the experience. Here are a (very) few memories.

    For one of the free time activities, all of the counselors put together activities for the campers to participate at their choice. I was interested in the "mountain" out behind the property, and I wanted to take some of the kids - 10-13 years old, on an expedition up the mountain. I remember no one chose my activity, which was not really surprising, since there were other camp favorite activities going on at the same time.


Fog rolling in across the mountain top

     We also had some free time in the cabins between meals and in general when the weather was bad. At first many of the kids sat, playing with magic the gathering cards (it was 1997, after all). I was never into Magic, so they tried to explain what they were doing to me. I was an old man to them, but only really about 8 years older than most.

     On another free time period in the cabins, I remember we took all of the mattresses off the cots and made a wrestling ring to do some "pro-wrestling" activities. I was the ref, and I remember there were a set of twins that were always in the ring. Only one was diabetic, but the beauty of this camp was that here, the non-diabetic was the unusual one.  

Thursday, March 10, 2016

Camp Utada

Camp Logo on a bandanna
     I stayed in contact with the Utah guys following the youth leadership conference. I was a senior in high school, and still going to the PA teen weekends. But I enjoyed the weekends so much, I wanted to see what it was like for diabetic camps in other parts of the country. And I used to ski, so when one of the guys asked if I wanted to come to camp out there, to a ski weekend at camp UTADA (Utah-ADA) this sounded like a perfect camp to check out. I'd finally get to see if the magic at the PA weekends was a universal thing or unique to us.

     It was the winter of 95-96, a record snow fall year for our part of PA. I remember, thanks to the snowdays, we were in school until mid June- a feat not easily attainable for the time. Needless to say, the depth of snow was not as grand out in Utah that winter, and I remember the piles of snow at the airport in Allentown were much higher than Utah, and the skiing quality was also much better back home thanks to the seasonal fluke. But I was not really going out there for the skiing.

     I remember being picked up at the airport by Dave, one of the camp directors, and the leader of the Utah clan at the YLC. We stopped by a Subway before making the treacherous journey to the cabin, Camp Kiesel, in the South Fork Canyon where the camp was located. Since we don't have mountains quite like the Rockies back east, I was in awe of the unfinished roads, and the lack of a guide rail, and the plunge to your death steepness of the cliffs. We bounced along the gravel trail leading to the cabin, pulling over where able to allow approaching or faster cars by. If they did have snow like we did in PA, I fear the roads may not have been accessible.

Me outback and up the hillside behind the main hall
     Although it was only 20 years ago, it was a fast-paced visit, and a whilrwind of new names and faces, so I do not remember all that much. Here are a few highlights:


  • Although the snow was not that fresh or as well groomed as the natural snow back home was, I took the most pleasure using the rental skiis and going off trail, where the powder was thicker and real
  • I did not make any long-time friends, but I remember having to stay over a night at a Mormon family's house before I flew back home (cannot remember if it was a counselor or camper's family). I remember there not being any soda, and the big, fun evening involved making popcorn. There were not many Mormons in Quakertown.
  • I remember there being a dance, which is always a crapshoot with a group of kids getting together on occasion for a short couple of days. I'm sure they all knew each other much better than I knew any of them, so it probably made sense. The DJs also played the new 311 tune that I kinda liked at the time, Don't Stay Home. 
  • During free time, I liked wandering around the camp grounds, the canyon was very pretty, and the weather was relatively mild for mid January
  • I remember trying to fit in, but never really accomplishing it, with the cliques that existed out there. As an outsider, it was very interesting to see and be forced into universal social structures.
  • I had my walkman with me, and remember I had just bought Ben Folds Five's first album for the trip out based on a CMJ music monthly recommendation of the song Underground. It was a worthwhile purchase.
  • Although I was not blown away by the camp, and did not cement any long lasting friendships over the short 3 days, I could see the parallels as a camper and the friendly dynamics.
Camp Rules and Procedures.